Prader Willi Syndrome Singapore Support Group

Prader Willi Syndrome Singapore (PWSS) support group was started in June 2004 with the help of Dr Denise Goh from NUH. Since then, PWSS has gathered about 12 families.

Our aims are:

• To provide support for PWS people and their families
• To increase public awareness of the syndrome
• To achieve early diagnosis of PWS children and promote better treatment and therapy by encouraging people to go for therapy and by providing information to practitioners, health authorities and schools.
• To encourage government funding for the research of cure and management of PWS

Meetings
Generally a young child with PWS who is not obese looks normal, so family and friends often do not understand either the need for food security or the parents’ grieving. The best source of support is other parents going through similar circumstances. Thus, support groups are very important especially for parents of children with PWS who are newly diagnosed.

In our half-yearly meetings, parents discuss feelings and issues that directly affect their children, themselves and the family as a whole. Sharing of information is another very important aspect of our meetings.

For more information on this support group, please contact Eric or Lina Low
Email Contact : linakhoo@gmail.com

Other support groups & programmes